Resources

Turner Syndrome Society of the United States
www.turnersyndrome.org 

 

Turner Syndrome Foundation
http://www.turnersyndromefoundation.org 

 

Turner – Know your body: An Information book on Turner Syndrome
http://np.netpublicator.com/netpublication/n75088268

 

Clinical Practice Guideline:
Care of Girls and Women with Turner Syndrome
http://media.wix.com/ugd/8fb9de_e000a4b246f44f2cbd4e5cd026576d74.pdf




Beauty for Ashes: The Butterfly Effect
by Andrea Horner

Non-Verbal Learning Disorder (NLD)

http://www.ldonline.org/article/6114/

http://www.mapleleafclinic.com/

Executive Function Skills-Explanation Vide
http://developingchild.harvard.edu/resources/multimedia/videos/inbrief_series/inbrief_executive_function/

School Success

Smart but Scattered
by Peg Dawson and Richard Guare

Smart but Scattered Teens
by Peg Dawson and Richard Guare

NLD: A Guide to School Success – The Teacher’s Manual
by D. Dean Mooney

NLD: School Success for Middle and High School
by Dr. JM Mooney

Camps/Conferences

The Courage to Risk Conference is a collaborative conference
comprised of a variety of organizations committed to the educational
success of students with diverse learning needs.
http://couragetorisk.org/


BITSS
Boston International Turner Syndrome Summit
A week-long fun and fulfilling summer experience, for young women
with Turner syndrome between the ages of 12 and 19.
Their mission is to bring young women with TS together for fun, enriching
experiences that build community and promote independence.
Boston, Massachusetts
http://www.bitssummit.org/



National Turner Syndrome Camp, Inc.
The National Turner Syndrome Camp, Inc. is a non-profit 501(c)(3) organization
dedicated to enabling teens and young women (12–19 years) with
Turner Syndrome to gain confidence and realize their potential.
The camp provides a fun-filled experience and a safe community that
facilitates long-term friendships, exploration of the arts, and healthy living.
Mount Saint Mary's University
Los Angeles, CA
http://www.ntscamp.org/

 

Turner Syndrome Girls camp at Kean University in Union, New Jersey. http://www.turnersyndromefoundation.org/summercamps.html

Autism Resources
http://caring4ourkids.com/


Partner Organizations

Global Genes Project
Offers webinars for parents, caregivers,
and patient advocates on a variety of topics. 
Past webinars are posted on the website in
case you cannot attend on the date.
http://globalgenes.org/webinars/

 

Turner Syndrome Global Alliance
http://www.turnersyndromealliance.org/

 

The Magic Foundation
http://www.magicfoundation.org/

Special Education

504b and IEP info for KS and MO

Great HeighTS Clinic - November 2016
Dr. Trista Perez-Crawford
Licensed Psychologist
Children's Mercy Hospital, Kansas City

Resources on Federal Law:
www.wrightslaw.com

The Everyday Guide to Special Education Law by Randy Chapman, Esq.
http://www.ncld.org/students-disabilities/iep-504-plan/is-504-plan-right-for-my-child

Academic Accomodation Resources:
http://www.washington.edu/doit/academic-accommodations-students-learning-disabilities

All About IEPs
by Peter W.D. Wright, Pamlea Darr Wright, Sandra Webb O’Connor

Parents Have the Power to Make Special Education Work
by Judith Canty Graves and Carson Graves.

Other Helpful Websites

http://www.educationspace360.com/index.php/nld-nvld-non-verbal-learning-disabilities-non-verbal-learning-disorder-turners-syndrome-18920/

http://www.turnersyndromefoundation.org/cushyUploads/whitepapers_3_1621102849.pdf

http://www.militaryfamily.org/info-resources/efmp-special-needs.html


©Turner Syndrome Society of Kansas City
P.O. Box 7572
Overland Park, KS 66207-9998