To improve the quality of life for individuals and families affected by Turner Syndrome. This is accomplished through the provision of public and professional awareness about the needs and concerns of individuals with Turner Syndrome and their families.
Information is made available to the community, educators, doctors and other helping professionals, via our newsletters, this web site, and the medical publications relating to Turner Syndrome.
Happy New Year!
And what a year we have a ahead of us. I wanted to remind you of some upcoming events in which I hope
you will be able to take part.
Friday, February 11th, 2011 - Children's Mercy TS Clinic - 9am-4pm
This will be our third comprehensive
medcal TS clinic here in Kansas City. It is a day that will allow your daughter to see her endocrinologist, complete lab
and x-ray procedures as well as other specialists visits if needed. The goal of the clinic is to have all future appointments
scheduled prior to leaving your appointment. If this did not happen for you back in October, please contact Renee Greathouse at Children's
Mercy 816-983-6445 as soon as possible. Confirm your clinic day appointment as well as provide her the list of any other specialists
that your daughter needs to see, so that she can coordinate these visits for you.
Friday Evening - February 11th, 2011
- "A Night to Meet New Friends"
Many of our families live throughout the Kansas City area as well as travel in from out
of town to take part in the TS clinic. It's great to meet other families and girls whose lives have been touched by TS, but there
never seems to be enough time inside of the clinic day to allow this to happen. We would like to extend the opportunity for each
of you to come and get to know other a little better, and many of our other families and women who do not use the Children's clinic. Please
contact me directly if you have any questions.
Semi Annual TSSKC Meeting - Saturday, February 12th - 12pm to 4pm
"SHORT
HAPPENS"
Come learn about the First National TS Awareness Campaign and what we can do locally here in Kansas City to increase TS awareness
across the Midwest.
We will also discuss updates and our 2011 Vision of TSSKC including the following
- Creation of an adult TS clinic
- Ongoing Awareness Campaign
- Hosting of a Midwest Regional
Conference
- Fund raising Activities and Events
- "Girl Power" Leadership Program
Annual
elections will be held for our local board positions. Anyone interested in a position as President, Vice-President, Treasurer
or Secretary, please contact me no later than Monday, January 24th for more information.
Feel free to contact me directly if
you have any further questions. If you need hotel information, please let me know as we are eligible for discounted rates through
Children's Mercy. I look forward to seeing all of you in a month or so.
