To improve the quality of life for individuals and families affected by Turner Syndrome. This is accomplished through the provision of public and professional awareness about the needs and concerns of individuals with Turner Syndrome and their families.
Children's Mercy Great HeighTS Clinic
on Friday, February 10th - 9 am to 4 pm
is open to all families in the Midwest.
We are eligible for discounted hotel rates through Children's Mercy.
You should have already received both a phone call and
a letter from Children's confirming your appointment time. If you have not, please contact Renee Greathouse at Children's Mercy
816-983-6445 as soon as possible. If you have not been seen before in the TS clinic but would like to, please call Renee as well and
she will arrange a time with your regular physician or if this is your first time being seen in the Endocrinology Department she will
set up a new patient appointment.
A craft and game room will be available from 10:45 to 1:30 that day for the girls to have fun
and meet other girls with TS as they wait for their appointments.
A “Lunch and Learn” program will also be offered from 11:30 am to
1:00 pm. Food and drinks will be provided at no cost by the hospital to the girls and their families. Gluten and dairy
free options will be available. This month’s topic will be an open question/answer session with a panel of five young adult women
who have successfully managed the additional obstacles of having TS as part of their lives. Please be advised that some questions
may be held and offered on a one on one basis to be sensitive to the age and appropriateness of the entire audience. If you have
questions and concerns regarding this topic prior to the clinic day, please feel free to contact Laine Scottnelson, RN in the Endocrinology
Department.
TSSKC Semi Annual Meeting
Saturday, February 11th - 10 am - 2 pm
PLEASE NOTE CHANGE IN LOCATION FROM PREVIOUS MEETINGS!!!
Don
Chisholm Building located just north of Children's Mercy Hospital - Main Campus at 2401 Gillham Road, Kansas City, MO 64108
We
will meet in Classroom A and B. Parking directly in front.
Click for MAP
Please call me at 913-220-8177 if you are running late and
need assistance.
Speaker at 10:00 am: Dr. Joe Cernich, M.D. - Endocrinologist, Children’s Mercy Hospital, Kansas City.
Topics:
*
"Everything You Didn’t Know to Ask About Managing Life with TS” – Overview of NHI guidelines followed by open question/answer session
* "Great HeighTS Clinic" – Moving Forward
Additional Agenda Items:
* Annual Board Meeting Elections/New Committee Positions
* School Based Nursing TS CME
Program National launch
* TS Awareness Month 2012
* 2012- Making a Difference and Growing Stronger in Kansas City-
Where do we want to go as a chapter?
1:00-1:30 PM – Lunch will be served (Gluten-free options available)
Please feel free to bring
your daughters and siblings to enjoy crafts, games and movies in the "Girl Power" Room. We will continue our afternoon out for
girls ages 12 and up with a planned "Girl Time" activity.
Please RSVP via e-mail to me no later than Monday, February 5th with
the number of people attending as well as ages of girls and siblings so that we make sure we have an accurate count for food, activities
and transportation to the bowling alley for the older girls.
Please feel free to contact me directly if you have any further
questions.
If you need hotel information, please let me know as we are eligible for discounted rates through Children's Mercy.
I look forward to seeing all of you.
Warm Regards -
Kelly Ranallo
President, TSSKC
913-220-8177
